Journal Update 4.15

Good evening! (as I typed that I heard the Count from Sesame Street saying it instead of me.)

I figured it was time for an update. This week I have had to battle discouragement. Discouragement because I’m still feeling tired, but more in not seeing weight loss or the fading of the purple marks on my skin. I still have “moon face”. On top of this struggle, I had several appointments this past week and it wore me out.

The Run Down:

Monday: afternoon doctor appointment

Tuesday: Chris doctor’s appointment; Fourth Grade Wax Museum 5:30-7 pm

Wednesday: afternoon doctor appointment, stopped at Kauffman Garden

Thursday: 2.5 hour visit to GP’s office; The Fellowship Band practice

Friday: The Fellowship Band practice

Saturday: NOTHING

Sunday: Church; Fundraiser for our friend, Nicole

The Details of it all:

Wednesday at my doctor’s appointment, they checked on my nose/sinus healing.

Actually, by the time we got down to the Plaza, I was tired and wanted to be in bed. I am grateful we didn’t have to wait long. In the room, we got vitals and recorded. The doctor arrived lickity-split. We do the usual back and forth about how I’ve been and about how successful the surgery was. Once she has me relaxed and confident in my progress, she pulls out two long skinny probe looking things. She sticks one up the nostril and the other one is a microscope or something. She was pleased with the inside of my nostrils. However, she did trick me.

The nurse comes back with a release form for the procedure to pull out some packing. Yes the packing is dissolvable, but she wanted to remove some. While there was a release of pressure in my sinus cavity, it still hurt to have it pulled out. When she clamped onto the mass and started to pull it slowly, the ripping of its adherence to my tissue made me cry. All I could see was the weird probe and her forceps.  The packing looked like a prune in color and size. I couldn’t believe she was able to pull that out of a nostril. I joked about taking a picture, but decided we should spare everyone that sight.

Despite my fatigue, I couldn’t let it get in the way of the rare Missouri day. Our spring has been cold. It’s actually snowing as I type. So the 80 degree, sunny weather told me to ask to visit the Kauffman Garden. We pass it on our way home. I was able to walk around a little. We went inside the green-house type building, smelled the flowers and I got to pet the resident cat. Most of the flowers still hadn’t been planted, but could be enjoyed inside.

Flowers
Some of the flowers waiting indoors to be planted in the beds at Kauffman Gardens

By Thursday morning, my body was worn out. I was tired. I had no drive to get up and even walk to the living room, but I needed to follow up with my GP. She needed to check on my blood pressure and I hadn’t seen her since I received the Cushing’s diagnosis. It was a long wait. They were running behind. I had a lot of information to update them on. The good news is that my blood pressure is running on the low side of normal. If it continues to trend low, we can start taking me off of meds for hypertension.

So it’s been pretty much more of the same. I’m tired most of the time. My fractures don’t feel any different. I sleep when I can and dab at my nose to avoid blowing.

Have a great week!

-Crystal

 

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2 thoughts on “Journal Update 4.15

  1. Dang. Keep praying for a faster recovery for you. You have to be so strong right now. Hope you can just let go once in awhile for your own good. Hope you can get the rest you need. ❤❤????????✍

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