One of the hardest things since surgery or maybe even since the confirmation of a pituitary tumor has been trying to find a doctor who will continue to follow me for general bone health and status of the NINE fractures that have not healed. In the area of orthopedics, doctors not only specialize in orthopedics, but certain areas of the body. It’s understandable since the adult human body is made of 206 bones. That would be a lot of bones to specialize in! However, for a patient like me, it makes it difficult to be followed for long-term care. I currently have three different orthopedic surgeons, a metabolic bone specialist and the endocrinologist who all consult on my bone health and fractures; however, when I have new pain, specifically in the pelvis, no one wants to follow me or help diagnose the source of new pain. After making this desire for one doctor who I could start with when I have new pain and someone to follow my pelvis know to my endocrinologist, she went to work researching. She ordered complete MRIs of both sides of my pelvis. It has been a headache to get this done. That story I will share if you want to know, or you can read it when my first memoir is published.
After my endocrinologist agreed to help me find someone, I have been anxious. Not a bad anxious. I so want to go swimming and begin my water exercises, again. I want to be given the green light to take my dog for walks. I want to dig in the garden. It all comes down to FINALLY being able to work on gaining my strength back and doing so without being exhausted and sick all of the time (side effects caused by the tumor).
God knows this desire of my heart. He knows the numbers of tears I’ve shed over this desire. His word affirms:
“The righteous cry out and Adonai hears and delivers them from all their troubles (Ps. 34:18 TLV).
Tuesday was my third attempt at trying to get an MRI completed. I walked into the Diagnostic Imaging Center and they tell me they’ve tried to get ahold of me, because my procedure was not approved. A lie. I had the paperwork from insurance. I talked with the doctor. DIagnostic called me to make the appointment. I was more than disappointed. It was like pouring toxic waste into an already stagnant pond. I got angry. I got assertive. It made them uncomfortable. But 2 hours later I was hobbling out with pain at an 8 on the 10-point scale. I felt triumphant I had gotten it done and survived the 1.5 hours on the table with my feet tied together (optimal position to rotate hips/pelvis to get the best images). Thank God they have music to listen to and you get to pick the station!
Rewind a bit: somewhere around two weeks ago or so, I started having an increase in the pain on the R side, again. I didn’t think anything of it. Each week, I have been increasing my activity level as part of the recovery from surgery. I chalked it up to muscles strengthening due to an increase in activity.
Chris and I hadn’t been home more than thirty minutes yesterday after the MRI and I got a call from the doctor’s office. They already had my results (I was told would take 48 hours for the imaging center’s radiologist to read. Then I’d have to wait for my doctor’s office). I think out of guilt for the continued snafu with Diagnostic Imaging Center, they put a rush order on my results.
Guess what? I have a fourth break on the R side. I had to ask the nurse twice to repeat herself. I really wasn’t expecting new breaks.
Now the wait is on for the referral to get read at a new orthopedic’s office and see if I can find the right fit there. (This is not to say that my doctors currently aren’t great. They are, but I need one person who can be the team leader, so to speak.)
What’s the point?
Twofold: 1. God answers and knows our hearts. He knew I couldn’t wait another week for the results and action in my health journey. I got the results same day and things are moving forward! 2. This is the latest update in the Cushing’s Disease remission journal.
Thanks for reading, for your prayers, and friendship. I hope this blesses you.
(Reminder: This is a journal entry. It’s meant to be raw, so that you and others can see you’re not in life alone.)